Wednesday, January 11, 2012

Beginnings of a new journey!

My journey with my hearing loss started when I was very young when I was fitted with hearing aids at the age of 3. And now 29 years later (you can figure out my age if you add it up you know?) I am starting a new journey; being able to hear with cochlear implants. As with any story, you need to know details of how this new journey started, so I thought I add the note that I sent to my friends about the recent (December 2011) prognosis:

"Hi all, I am sharing with you as a friend in hopes that you will join me in prayers! Just a year ago I was in a coffee shop crying happy tears that with my new hearing aids i could hear the harps play for the first time in my life. Just a year this past week, i find myself crying to find that i have lost all my hearing and now considered deaf! This has come in such a shock to me, so quickly and sudden. The doctors do not know why or how i lost my hearing, they have some theories but in all, my hearing will not come back. I thought this would happen, but at a much older age, not now among my thriving lifestyle as a mom and wife! Needless to say i have been grieving over this loss. Our hope right now is looking into cochlear implants, i meet with specialists in January to find out more. I remember as a little girl asking God to take my hearing away, He instead changed my heart, and now I ask Him of nothing but His will! I trust Him as I have and do with my life! Please pray for me as I struggle more so with no hearing with my children (bless them for their patience and help!), and being reminded daily of what I cannot hear. Rob and I are trusting Him because we have hope in Him! I love my husbands support, my children's love, and my all my friends prayers!"

So fast forward to yesterday, January 2012, I went to OSU to meet the specialists, after several hours of testing (never had so many different hearing tests), the specialist said that I qualify for cochlear implants. Now if you don't know what this all entails, here is a website that tells you more about this implantation in the skull/ear: http://en.wikipedia.org/wiki/Cochlear_implant
I was overwhelmed by the information of how much work this would require: coming in for 3-4 hour surgery, going home to recover and let swelling go down for 6 weeks, come back and then turn it on and hear, then come back every week for adjustments for the next six months. Then I was told there were lots of side effects such as paralysis of side of face, loss of taste (So I reasoned, OK: I can lose weight easily this way! Not a bad thing!), and other risks as well, but those two were the ones that stood out to me. The good news is they told me that I would be able to hear 30% more from wherever my hearing level is on the chart. At this point, I am not on the chart at all, so I asked where that would put me on the chart, she showed me and my jaw just dropped!!!! I said, "You mean to tell me that I would be able to hear at this level, a level where I have never been even with my hearing aids on all these years?!!!!" She said, "Yes I know, isn't that incredible, we can't predict exactly what you will be able to hear, everyone is different as to what their ear allows them to hear, but it hits this amount at least." I just cannot even comprehend being able to hear at that level! So with mix feelings of the fact that I am not a big fan of surgery and I was just dreading this and not wanting to go through this and want alternatives to be able to hear again(which the doctor informed me that there are none, this is it!). So on the way home, I felt a tap on shoulder by my bright and beautiful 7, soon to be 8 year old daughter who informed me that the remote control to my hearing-aid-processor that I would have to wear would be cool and she can't wait to have fun with me on that! Then it dawned on me, I want to hear her laughing at that moment, so risking paralysis/loss of taste would be worth hearing her laugh again, to be able to hear the ocean again, to hear my newest baby coo in my arms, to be able to hear my rambunctious 4 year old boy run around screaming "awesome" again, to hear my hubby say the words, "I love you." So yes, I am going to get the cochlear implants, until God can completely restore my hearing in heaven, why not enjoy this gift here and enjoy my life again?!

4 comments:

  1. Hey Heather, You know I hope that I have always loved you. I think you are one of the most beatiful, grace-full people I know . Your journey here only confirms that. Doris and I will be praying. Mike Courtney

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    1. Mike, Thanks for all your prayers and support! I appreciate you and your family!

      Blessings,
      Heather

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  2. Wow Heather! What an amazing opportunity for u! I will be praying w u as u are on this journey. I always used to love to watch u sign in chapel services at college. When I saw u at wmart a few weeks ago I had no idea what was transpiring in your life. It must be pretty incredible, amazing, overwhelming and truly wonderful (all rolled into one) to have this opportunity. Will look forward to following ur blogs and updates, and reading about the incredible things God is doing in your life!!! :)
    ~Carolyn Hamman

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  3. Hi Carolyn,

    I was worried that I would not be able to understand you and was so relieved that we were able to have a short conversation! Thanks for all your support!!
    Heather

    ps. I love reading your funniest responses on facebook!

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